2022 Year in Review

Research is at the heart of our mission The mission of the SMS Research Foundation is to advance scientific research... Read More


2021 Year in Review

– We have submitted our National Organization of Rare Disorders (“NORD”) application. Membership in this organization will allow us to... Read More


Gene Therapy Update

March 2019- Update on research at the Elsea Lab at Baylor College of Medicin Challenges and opportunities in SMS therapy... Read More


Marine Corps Marathon

WE WANT TO CARRY YOU. On October 22, 2017, I will be participating in the Marine Corp Marathon in Washington, DC... Read More