Research Partners and Supporters

We are incredibly grateful to the following organizations who have provided financial support to grow and continue the SMS Research Foundation’s mission of improving the knowledge and understanding of Smith-Magenis Syndrome so that viable therapeutic options can be developed in order to improve the quality of life of those with SMS.



Collaborations

The SMS Research Foundation is proud to collaborate with PRISMS to support the entire Smith-Magenis Syndrome (SMS) community of families and professionals through joint awareness campaigns and initiatives to empower the lives of individuals affected by Smith-Magenis Syndrome and to strengthen the solidarity of the SMS community.

Joint Mission Statement:

PRISMS, Inc. and SMS Research Foundation, Inc. support and advocate the individual missions of their separate organizations, uniting their voices to advance clinical and basic research on Smith-Magenis Syndrome (SMS), and combining their awareness efforts through joint awareness campaigns and initiatives to empower the lives of individuals affected by Smith-Magenis Syndrome and to strengthen the solidarity of the SMS community.

Overview of Principals:

  • PRISMS and SMSRF recognize and maintain their individual missions and core values
  • PRISMS and SMSRF are committed to working together to promote those individual missions in a collegial and non-competitive way to best serve the entire SMS community
  • The supportive collaboration between PRISMS and SMSRF will specifically:
    • Establish a Collaboration Committee comprised of 2-3 representatives from each organization to maintain routine communication and facilitate joint activities
    • Coordinate to unify their voices around SMS Awareness Day, promoting a common theme and message
    • Develop a joint SMS Research Symposium event to enhance inclusive and open dialogue amongst a variety of  researchers
    • Document an SMS Research Action Plan representing both clinical and basic science needs across the community
    • Represent each other’s organization and work across social media and respective websites
    • Coordinate additional joint initiatives and messaging as necessary

More about PRISMS:

PRISMS, Inc. is a nonprofit 501(c)(3)  advocacy, education, and support organization for individuals with Smith-Magenis Syndrome (SMS), their families, and the professionals who serve them. Formed on February 4, 1993 by a group of parents and professionals with a desire to build education, awareness, and research opportunities for all those affected by SMS, PRISMS is dedicated to building a future of hope for SMS families around the world.

To learn more about PRISMS and the organization’s many programs and services, please visit www.prisms.org.

To gain access to ongoing information related to PRISMS programs and services, the SMS community, upcoming events and more, join PRISMS free membership: https://www.prisms.org/membership/