Run for Research 2013
September 3, 2013 6:12 pm Leave your thoughtsNovember 17, 2013 Philadelphia Marathon Jennifer Iannuzzi, co-founder of the SMS Research Foundation completed the Philadelphia Marathon on Sunday, Nov.... Read More
Author Archives for Angela Weaver
Spin-A-Thon 2013
September 3, 2013 6:08 pm Leave your thoughtsNovember 10, 2013 There was great spinning on Sunday, Nov. 10, 2013 at the Elevation Spin Studio in Georgetown, CT.... Read More
2012 Grant Awarded
May 30, 2013 10:15 pm Leave your thoughtsThe SMS Research Foundation is proud to announce that its second annual grant for $50,000.00 has been awarded to Sarah Elsea,... Read More
Sienna’s Steps Night of Laughter 2013
May 29, 2013 6:39 pm Leave your thoughtsOn Wednesday, November 13, 2013, Smith-Magenis Research Foundation (SMSRF) hosted our first “Laugh It Up” fundraising event at the Seminole... Read More
2010 Foundation Recap
May 10, 2013 6:29 pm Leave your thoughtsThis is a recap of the fundraising event efforts in 2010, our first year as a Foundation, which allowed us... Read More
Damian’s Story
May 10, 2013 2:05 pm Leave your thoughtsDamian was our first child so as first time parents, my wife and I really had no idea anything was... Read More
Sydney’s Story
May 10, 2013 1:59 pm Leave your thoughtsSydney Emma was born on December 23, 2005. It was a typical day for a family who was just about... Read More
Jeremy’s Story
May 8, 2013 6:49 pm Leave your thoughtsJeremy was diagnosed with SMS at the age of 19 months. After many months of testing and seeing a multitude... Read More
Sienna’s Story
May 7, 2013 6:55 pm Leave your thoughtsSienna Rose was diagnosed with Smith-Magenis Syndrome in June of 2006 when she was just 4 weeks old after undergoing open... Read More
Triathlon Fundraiser 2012
December 27, 2012 12:22 am Leave your thoughtsHere’s a photo of Team Sydney participating in a triathlon fundraiser in September 2012 in Westchester, NY.