Stories

The Sauer Family’s Story

Our son Aaron was born on April 1, 2019. He is our second child, and we had a typical pregnancy... Read More

Presenting you with the official 2016 SMS Awareness video for the #SeeMySpecialness campaign. P.S. Thank you to ALL of our... Read More

Learn about the Iannuzzi family.

Ask Me What It Is- A VIDEO of families from around the world talk about Smith-Magenis Syndrome from their personal point... Read More

Damian was our first child so as first time parents, my wife and I really had no idea anything was... Read More

Sydney Emma was born on December 23, 2005. It was a typical day for a family who was just about... Read More

Jeremy was diagnosed with SMS at the age of 19 months. After many months of testing and seeing a multitude... Read More

Sienna Rose was diagnosed with Smith-Magenis Syndrome in June of 2006 when she was just 4 weeks old after undergoing open... Read More

A Video from the Longman Family of Florida and how SMS impacts their lives.

The first person I called after receiving my daughter’s diagnosis of Smith-Magenis Syndrome (SMS) was my mother – the person... Read More