Our Annual September Steps Move Science Virtual Walk will be a fun and effective way to raise awareness and research funding for Smith-Magenis Syndrome (SMS).
Even though we won’t be running on the same course – we will be on the same track: our efforts will raise awareness and much-needed funding to fuel our quest to reach the day when we have innovative treatment options for people living with Smith-Magenis Syndrome.
WHO: Anyone can join! Register to create your own team, support an existing team, or just walk on your own. You’ll have the chance to set up your own fundraising page, with your story and pictures, and all of the support to make your efforts to fund SMS Research successful. With each step you take with us, we are funding research and ultimately getting closer to improving the lives of people with Smith-Magenis Syndrome.
WHAT: You will walk to raise awareness and research funding for Smith-Magenis Syndrome. To recognize the deletion in the 17th chromosome which causes SMS, we are encouraging (but not requiring) participants to walk for 17 minutes, 17 blocks, or 1.7 miles.
WHEN: Join us (virtually) the fourth Saturday in September for the Annual Steps Move Science Walk to support the SMS Research Foundation! You can cover the distance at any time on Saturday. *If unable to walk on the fourth Saturday of the month complete your walk anytime during the month of September.
WHERE: Any location that is convenient for you!
WHY: Currently there are no treatment options for Smith-Magenis Syndrome. That’s why we walk. Smith-Magenis Syndrome is a complex developmental disorder that affects multiple organ systems of the body. The disorder is characterized by a pattern of abnormalities that are present at birth (congenital) as well as behavioral and cognitive problems. The SMS Research Foundation is a non-profit organization dedicated to supporting research to improve the knowledge and understanding of Smith-Magenis Syndrome so that viable therapeutic options can be developed in order to improve the quality of life of those with SMS. The Steps Move Science Virtual Walk for Smith-Magenis Syndrome supports the mission of the SMS Research Foundation as we raise public awareness and funds for life-changing research.
HOW: By taking Steps to Move Science! A great way to spread awareness is posting photos and/or videos of your walk on social media. Be sure to tag the SMS Research Foundation, and use the hashtags #stepsmovescience and #smswalk. Thank you for your participation and support!
Considering sponsoring the Steps Move Science Walk? We offer numerous sponsorship opportunities to allow you to participate at a level that makes sense for you or your company.
If you have any questions or need additional information, please contact us at info@smsresearchfoundation.org.
