March 6, 2026 9:19 am
Published by kyle@eleventygroup.com
Fifteen years ago, the Smith-Magenis Syndrome Research Foundation was founded on the belief that families, clinicians, and researchers working together could move the science forward and improve the lives of individuals living with Smith-Magenis syndrome. For many of us, this mission is deeply personal, shaped by the daily realities of loving and supporting someone with SMS. Read More
October 20, 2025 9:28 am
Published by kyle@eleventygroup.com
As a founding member of the SAP, Chris has been instrumental in shaping the Foundation’s scientific vision and guiding its... Read More
August 22, 2025 3:24 pm
Published by kyle@eleventygroup.com
We are pleased to announce that, following an extensive search process led by our Board of Directors, Bob Robinson has... Read More
August 22, 2025 3:12 pm
Published by kyle@eleventygroup.com
McGill University–supported Professor Dr. Wei-Hsiang Huang has just received a $1,025,100 five-year grant from the Canadian Institutes of Health Research to continue his groundbreaking SMS research.... Read More
December 19, 2024 10:11 am
Published by kyle@eleventygroup.com
Two World-Class Institutions, One Goal: A Breakthrough for Smith-Magenis SyndromeDr. Wei-Hsiang Huang (McGill University) and Dr. Xiaojing Gao (Stanford University)... Read More
