| In This Issue |
| Challenge Grant |
| Latest News |
| Research Update |
| Upcoming Events |
| SMSRF Video |
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Mission
The mission of the SMSRF is to support research to improve
the knowledge and understanding of
SMS so that viable therapeutic options
can be developed in order to improve the quality of life of those with SMS.
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SMSRF NEWSLETTER
Welcome to the inaugural edition of the SMS Research Foundation newsletter, keeping you informed of the latest research, programs and events occurring at the foundation. Please feel free to share this with friends and family.
Sincerely,
SMSRF Board of Directors |
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2015 CHALLENGE GRANT
 The SMSRF is pleased to announce an incredible fundraising opportunity!
An anonymous donor has offered $50,000 in the form of a challenge grant.
All funds donated to the SMSRF throughout the ensuing months will be matched up to $50,000. It is important that we take full advantage of this opportunity to maximize our ability to fund the SMSRF Research Initiative at the Baylor School of Medicine. Get started here!
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LATEST NEWS
Big news from Baylor College of Medicine regarding
the SMS Initiative! “A little more than a year after announcing the dedication of a new center for the
study of Smith-Magenis Syndrome at Baylor College
of Medicine, the Smith-Magenis Syndrome Research Foundation has announced an additional $200,000 gift.” Read more…
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RESEARCH UPDATE
The first year of research at the Baylor College of Medicine was very successful. We have made progress
in gaining a better understanding of the function of the RAi1 protein. To learn more about what Dr. Elsea and
Dr. Lupski have been working on, click here.
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UPCOMING EVENTS
May 1-2, 2015: The SMSRF co-founders will be attending the 2015 SMS UK Conference in Birmingham, England in order to increase international awareness of the SMSRF mission and goals and to educate families and other SMS organizations about global participation.
November 2015: Fundraising events will take place in Connecticut, Florida, and California. Exact dates and more details will be announced soon. Please contact us if you are interested in hosting an event!
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SMSRF VIDEO
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| Smith-Magenis Syndrome Research Foundation Video |
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The Smith Magenis Research Foundation is a 501(c)(3)
nonprofit organization founded in June 2010.
Tel: (203) 450-9022 Copyright © 2015. All Rights Reserved.
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