Improving Lives Through Research

The Smith-Magenis Syndrome Research Foundation is dedicated to improving the lives of people with SMS. Since our founding in 2010, we have been singularly focused on investing in scientific research that will lead to life-changing therapeutics for this rare and complex genetic syndrome.  Our 2022-2025 Strategic Plan charts a course toward realizing our vision to change the future prognosis of Smith-Magenis Syndrome for our kids, and for generations to come.

Mission

To advance scientific research leading to innovative treatment options for people living with Smith-Magenis Syndrome (SMS).

Guiding Principles

  • We are fueled by passion and an unwavering belief in science.
  • We provide a clinical perspective and empathetic insight.
  • We provide hope for families and believe in the possibilities of tomorrow.
  • We are innovative and forward thinking.
  • We hold true to our mission.
  • We will work tirelessly toward a treatment

2022-2025 Strategic Priorities

  1. Robust scientific research. Our core purpose is to invest in cutting-edge research that explores gene therapy, accelerates drug development, and helps all people with SMS lead positive, productive and rewarding lives. Our goal is to fund a diverse portfolio of promising science that delivers knowledge in the short- and long-term.
  2. Community engagement and enhanced resource development.  We seek to engage the SMS community and strengthen the Foundation’s financial resources in order to expand our innovative research programs. Our goal is to build a movement and empower families across the world, so that awareness of SMS grows and our research investments are sustainable.
  3. Committed leadership and operational excellence. We strive to align our leadership, governance and operations with strategic goals in order to meet today’s challenges and ensure continued organizational growth and sustainability. Our goal is to introduce new systems and data tools that will help streamline the day-to-day work of the Foundation, while maintaining a dynamic and high-touch approach.

SMS Research Foundation relies on the dedication and engagement of the SMS community and our research partners to advance our strategic priorities.  We encourage SMS families and interested partners to get involved and support our mission to increase awareness of SMS, take SMS research into the future and improve the lives of all SMS kids and families.