Join the Steps Move Science Walk
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Registration is now open for the annual Steps Move Science Walk! This virtual event is a fun and effective way to raise awareness and research funding for Smith-Magenis Syndrome. Whether you want to create your own team, support an existing team, or walk on your own, this is your chance to make a difference. Register today and help fund SMS research.
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By participating in the Steps Move Science Walk, you are joining a community dedicated to improving the lives of individuals with Smith-Magenis Syndrome. Together, we can make a significant impact. Every step you take brings us closer to innovative treatment options and a better quality of life for those impacted by SMS.
Get Ready to Walk: Everything You Need to Know
WHO: Anyone can join! Gather your friends, family, and colleagues to form a powerful team, or register to show your support for another team. Even walking individually can create a remarkable impact on our mission. When you register, you'll have the option to set up your own fundraising page, where you can share your story and pictures, and receive all the necessary support to make your efforts in funding SMS Research successful. To ensure your success, don't forget to check out the Team Captain's Packet.
WHAT: Walk to raise awareness and research funding for Smith-Magenis Syndrome. To recognize the deletion in the 17th chromosome which causes SMS, we are encouraging (but not requiring) participants to walk for 17 minutes, 17 blocks, or 1.7 miles.
WHEN: Join us (virtually) on Saturday, September 28th 2024 for the Annual Steps Move Science Walk. *However, if you are unable to walk on that day, you can complete your walk anytime during the month of September.
WHERE: Any location that is convenient for you! Whether it's your neighborhood, a local park, or even a treadmill, the great part about this virtual event is that you can participate from anywhere.
WHY: Currently there are no treatment options for Smith-Magenis Syndrome. That’s why we walk. Smith-Magenis Syndrome is a complex developmental disorder that affects multiple organ systems of the body. The disorder is characterized by a pattern of abnormalities that are present at birth (congenital) as well as behavioral and cognitive challenges. The SMS Research Foundation is a non-profit organization dedicated to supporting research to improve the knowledge and understanding of Smith-Magenis Syndrome so that viable therapeutic options can be developed in order to improve the quality of life of those with SMS. The Steps Move Science Virtual Walk for Smith-Magenis Syndrome supports the mission of the SMS Research Foundation as we raise public awareness and funds for life-changing research.
But that's not all! There are more ways to get involved and make an impact...
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Support Research with Steps Move Science Walk Apparel! |
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Show your support by ordering Steps Move Science Walk t-shirts, tanks, hats, and bags from our online store. This year, we have youth sizes, relaxed fits, and comfort colors options. All proceeds from the sales will directly fund life-changing research. |
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You also have the opportunity to design your own personalized team fundraiser shirt on Bonfire and contribute to the mission of the SMS Research Foundation. By creating a unique shirt for your team or walk, you can make a powerful statement and support life-changing research. Join us in spreading awareness and making a difference by creating your personalized shirt - start designing today!
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Elevate Your Impact: Become a Sponsor |
Be a Proud Sponsor of the Steps Move Science 2024 Virtual Walk! We value our sponsors and appreciate their essential support. Explore our comprehensive sponsorship package, offering exclusive sponsorship levels tailored to meet your goals. However, we are also ready to customize an impactful partnership to suit your unique needs. Discover more in our Sponsorship Packet or reach out to us at info@smsresearchfoundation.org for details.
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Spark Awareness: Boost the Impact of the Steps Move Science Walk through Social Media!
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Spread the Word: Let the world know that you've registered for the walk and why you're participating! Post photos and/or videos of your walk on social media, tagging the SMS Research Foundation and using the hashtags #stepsmovescience and #smswalk. We'll also be featuring Steps teams for Share My Strength Saturdays. Together, we can raise awareness and funding for life-changing SMS Research. Join us in spreading the word and making a difference!
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Make a Difference: Donate Today and Support SMS Research! |
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You can donate by texting SMS to 50155 or visiting our online donation page. Every dollar counts in our mission to support SMS research and empower individuals with this syndrome. Remember, your donation is tax-deductible. The SMS Research Foundation is a 501(c)(3) nonprofit organization (Tax ID: 27-2906662), ensuring that your generosity goes towards creating positive change. Join us in making a meaningful impact today!
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Thank You for Your Support in Moving Science Forward! |
We extend our heartfelt appreciation to all participants, sponsors, and supporters who have joined us in the Steps Move Science Walk. Your steadfast dedication and generosity are vital in driving meaningful change for individuals living with Smith-Magenis Syndrome.
We appreciate your continued support in our mission to improve the lives of those impacted by SMS. If you have any questions or require additional information, please don't hesitate to reach out to us at support@smsresearchfoundation.org.
Together, let's take Steps to Move Science and create a lasting impact on the lives of individuals with Smith-Magenis Syndrome! |
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Fueling Innovation: Annual Grant Program |
Our annual grant program has an exciting update: the Scientific Advisory Panel (SAP) received concept papers earlier this month, and will review and request full proposals, due September 3rd.
We launched the annual grant program to fulfill our mission of supporting research so that viable therapeutic options can be developed in order to improve the quality of life of those with SMS. These grants will fund novel but scientifically sound ideas from new and experienced researchers interested in SMS. Our goal is to create a consistent stream of available funds to facilitate the SMS research community.
Learn more about the SMS Research Foundation grant program and how your support is fueling innovation here. Together, let's make a difference and create a brighter future for those affected by Smith-Magenis Syndrome. |
Celebrating 14 Years of Impact |
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Looking back on the past 14 years, we express our deepest gratitude to the incredible individuals that have made this all possible. Your unwavering dedication and endless support have been instrumental in making significant strides in advancing research for Smith-Magenis Syndrome. From funding innovative projects to fostering hope, your involvement in the Steps Move Science Walk and beyond has been key to our momentum. Together, we are creating a brighter future for everyone impacted by Smith-Magenis Syndrome. Thank you for being part of our community, and here's to many more years of determination and breakthroughs. You can see some of our progress here!
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Improving Lives Through Research
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The SMS Research Foundation is dedicated to improving the lives of people with SMS. Since our founding in 2010, we have been singularly focused on investing in scientific research that will lead to life-changing therapeutics for this rare and complex genetic syndrome. |
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