Advancing Research and Building Hope

As the vibrant colors of fall emerge and the air turns crisp, we reflect on the incredible progress we've made together this year. Fall is a time of transformation, and thanks to your dedication, we are transforming hope into action for Smith-Magenis Syndrome.

We are excited to share that the September Steps Move Science Walk raised an incredible $34,020! Your support will directly fund research that improves the knowledge and understanding of Smith-Magenis Syndrome, bringing us closer to developing therapeutic options that will improve the quality of life for those impacted by SMS.

A heartfelt thank you to everyone who supported our annual fundraiser. We can't fund research without you!

We’d LOVE Your Help Raising SMS Awareness

This November, we’re all about raising awareness for Smith-Magenis Syndrome, and we want you to be a part of it! The SMS community is filled with stories of love, strength, and resilience, and we’d love to hear yours. Whether it’s “I love someone with SMS” or “I love someone with SMS (it’s me)”, your story can truly make a difference in how others understand and connect with SMS.

By sharing your experience, you can help make this month of awareness even more impactful. We’d love to feature your story and amplify the voices of our incredible community.

Mark Your Calendars—November 17th is SMS Awareness Day!

November 17th is SMS Awareness Day, and now’s the time to grab your awareness apparel! Order today so it arrives in time to help spread awareness. With a variety of styles and colors, you can pick your favorite and show your support.

Every purchase goes directly toward funding research that’s moving us closer to life-changing breakthroughs for those with SMS. Don’t wait—get your apparel and make an impact!

This season of change is the perfect time to make a lasting impact. The SMS Research Foundation has been driving innovative research since 2010, and with your help, we can keep pushing forward toward new breakthroughs for Smith-Magenis Syndrome.

Your support fuels the discoveries that lead to better treatments and a brighter future for those with SMS. Every donation counts—let’s work together to turn today’s research into tomorrow’s solutions.

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