Igniting Innovation: Grant Applications Now Open

Thanks to your incredible support, the SMS Research Foundation is now accepting grant proposals for innovative research about SMS!

Our goal is to create a consistent stream of funds to facilitate SMS research as we move the field forward towards viable therapeutic options - but we're only able to do this exciting work because of our amazing supporters.

Learn more about the SMS Research Foundation Grant and how your support is fueling innovation by visiting our website. Together, let's make a difference and create a brighter future for those impacted by Smith-Magenis Syndrome.

Mark your calendars and join the Smith-Magenis Syndrome Research Foundation for our virtual Steps Move Science Walk this September 28!

Even though we won't be running on the same course, we will be on the same track. Our efforts will raise awareness and much-needed research funding to fuel 

our quest to reach the day when we have innovative treatment options for people living with SMS.

Visit our website to learn more about the walk. Registration will open soon — stay tuned for details!

SMS Awareness Spotlight: Singing With Marni

Marni Tanenbaum is a very sweet 7-year-old girl from Manalapan, New Jersey, who was diagnosed with SMS in 2021. Through the love and support of her family, friends, teachers, caregivers, and community, she has a support structure in place to help her get through her daily struggles. Despite these challenges – like all SMSers – Marni has an endearing personality, is affectionate, loves to give hugs, has an excellent memory and infectious sense of humor, and most of all…she loves to be the center of attention.

It’s for this reason that Marni will be singing “Take Me Out to the Ballgame” at the Jersey Shore Blueclaws take on Brooklyn on Sunday, June 2! Marni’s extremely patient and supportive brother Logan Tanenbaum, who is an avid Manalapan Braves travel baseball player, will also have the honor of throwing out the first pitch! Learn more about the Singing With Marni event here.

Would the SMS loved one in your life enjoy following in Marni's footsteps by spreading SMS awareness and supporting research through singing at a Minor League baseball game? If so, please contact SMS Research Foundation board member Steven Tannenbaum at stanenbaum@gmail.com.

SMSRF is Lenox Corp's Charity of the Month

Exciting news: We are Lenox Corporation's Charity of the Month for May! This month, Lenox is matching your donations made at checkout to SMS Research Foundation up to $10,000. That means you can DOUBLE your impact for the SMS community!

Many thanks to Tim Benson, Lenox Corporation Facilities Manager, for nominating us for this honor. 

As Tim wrote, “My prayer is that your donation will improve treatment options and the lives of SMS children and their families. My nephew Cole is challenged with SMS. This is why this charity is close to my heart. The goal is to improve awareness of this rare syndrome so that effective treatments can be developed to improve the cognitive delays and behavioral issues of those living with SMS.”

We hope you'll share on Instagram or Facebook, and tell your friends and family, to help us spread the word about this exciting donation match from Lenox and increase the impact for SMS research! You can also read more about the SMSRF and Lenox here.

Blossoming Hope: Support Research

As spring blooms, your support ignites hope and advances research for Smith-Magenis Syndrome. Each donation brings us closer to breakthroughs that promise more joy and fewer obstacles for individuals with SMS. Your contribution is pivotal, propelling our research forward, unlocking new possibilities, and offering renewed hope to families navigating SMS. Join us in fostering the growth of our research efforts. Your gift today plants the seeds of hope and progress for the SMS community.

Our Contact Information
*{{Organization Name}}*
*{{Organization Address}}*
*{{Organization Phone}}*
*{{Organization Website}}*

*{{Unsubscribe}}*