Join the Steps Move Science Walk: Register Now!
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We are thrilled to announce that registration is now open for the annual Steps Move Science Walk! This virtual event is a fun and effective way to raise awareness and research funding for Smith-Magenis Syndrome. Whether you want to create your own team, support an existing team, or walk on your own, this is your chance to make a difference. Register today and help us fund SMS research.
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By participating in the Steps Move Science Walk, you are joining a community dedicated to improving the lives of individuals with Smith-Magenis Syndrome. Together, we can make a significant impact. Every step you take brings us closer to innovative treatment options and a better quality of life for those affected by SMS.
Get Ready to Walk: All the Details You Need to Know
WHO: Anyone can join! Unite your friends, family, and colleagues to form a powerful team, or register to show your unwavering support for another team. Even walking individually can create a remarkable impact on our mission. When you register, you'll have the option to set up your own fundraising page, where you can share your story and pictures, and receive all the necessary support to make your efforts in funding SMS Research successful. To ensure your success, don't forget to check out the Team Captain's Packet.
WHAT: Walk to raise awareness and research funding for Smith-Magenis Syndrome. To recognize the deletion in the 17th chromosome which causes SMS, we are encouraging (but not requiring) participants to walk for 17 minutes, 17 blocks, or 1.7 miles.
WHEN: Join us (virtually) on Saturday, September 30th 2023 for the Annual Steps Move Science Walk. *However, if you are unable to walk on that day, you can complete your walk anytime during the month of September.
WHERE: Any location that is convenient for you! Whether it's your neighborhood, a local park, or even a treadmill, you can participate from anywhere.
WHY: Currently there are no treatment options for Smith-Magenis Syndrome. That’s why we walk. Smith-Magenis Syndrome is a complex developmental disorder that affects multiple organ systems of the body. The disorder is characterized by a pattern of abnormalities that are present at birth (congenital) as well as behavioral and cognitive challenges. The SMS Research Foundation is a non-profit organization dedicated to supporting research to improve the knowledge and understanding of Smith-Magenis Syndrome so that viable therapeutic options can be developed in order to improve the quality of life of those with SMS. The Steps Move Science Virtual Walk for Smith-Magenis Syndrome supports the mission of the SMS Research Foundation as we raise public awareness and funds for life-changing research.
But that's not all! There are more ways to get involved and make an impact...
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Support Research with Steps Move Science Walk Apparel! |
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Show your support by ordering Steps Move Science Walk shirts from our online store. All proceeds from the sales will directly fund life-changing research. |
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You also have the opportunity to design your own personalized team fundraiser shirt on Bonfire and contribute to the mission of the SMS Research Foundation. By creating a unique shirt for your team or walk, you can make a powerful statement and support life-changing research. Join us in spreading awareness and making a difference by creating your personalized shirt today Start Designing!
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Elevate Your Impact: Become a Sponsor |
Be a Proud Sponsor of the Steps Move Science 2023 Virtual Walk! We value our sponsors and appreciate their essential support. Explore our comprehensive sponsorship package, offering exclusive sponsorship levels tailored to meet your goals. However, we are also ready to customize an impactful partnership to suit your unique needs. Discover more in our Sponsorship Packet or reach out to us at info@smsresearchfoundation.org for details.
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Ignite Awareness: Amplify the Impact of the Steps Move Science Walk through Social Media!
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Spread the Word: Let the world know that you've registered for the walk and why you're participating! Post photos and/or videos of your walk on social media, tagging the SMS Research Foundation and using the hashtags #stepsmovescience and #smswalk. Together, we can raise awareness and inspire others to support this vital cause. Join us in spreading the word and making a difference! |
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Make a Difference: Donate Today and Support SMS Research! |
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Your contribution can have a profound impact on the lives of individuals with Smith-Magenis Syndrome. By donating to the Steps Move Science 2023 Virtual Walk, you help us advance research and improve the quality of life for those affected by SMS. Your support brings us one step closer to finding answers and making a lasting difference.
You can donate by texting SMS to 50155 or visiting our online donation page. Every dollar counts in our mission to support SMS research and empower individuals with this syndrome. Remember, your donation is tax-deductible. The SMS Research Foundation is a 501(c)(3) nonprofit organization (Tax ID: 27-2906662), ensuring that your generosity goes towards creating positive change. Join us in making a meaningful impact today! |
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Thank You for Your Support in Moving Science Forward! |
We extend our heartfelt gratitude to all participants, sponsors, and supporters who have joined us in the Steps Move Science Walk. Your unwavering dedication and generosity are instrumental in driving meaningful change for individuals living with Smith-Magenis Syndrome.
We appreciate your continued support in our mission to improve the lives of those affected by SMS. If you have any questions or require additional information, please don't hesitate to reach out to us at info@smsresearchfoundation.org.
Together, let's take Steps to Move Science and create a lasting impact on the lives of individuals with Smith-Magenis Syndrome! |
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Taking Steps to Move Science - Jenni's Inspiring Story |
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In our Share My Strength spotlight, we proudly feature the inspiring story of Jenni, a resilient SMS Mom who is embarking on a monumental challenge to support Smith-Magenis Syndrome Research.
Jenni shares, "This August, I will be taking on the Ironman in Mont Tremblant, Quebec, Canada. I am dedicating my training and race day to raising funds for Smith-Magenis Syndrome Research through the SMS Research Foundation. As many of you know, SMS is the rare disease that Griffin was born with and that affects his life on a daily basis. So, while I put in the training to get ready for swimming 2.4 miles, riding 112 miles, and running 26.2 miles on race day, I will be raising funds for research."
We are incredibly grateful to Jenni for her unwavering strength and determination. Her inspiring dedication not only showcases her personal triumph but also contributes to the advancement of SMS research. To learn more about Jenni's story or make a donation, visit Train with Heart, Race for SMS Research
If you have your own story of strength to share, we would love to hear it! Email jsauer@smsresearchfoundation.org for more details.
Let's applaud Jenni and all the individuals who inspire us with their extraordinary efforts in supporting Smith-Magenis Syndrome research!
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Igniting Innovation: Grant Applications Now Open! |
Thanks to your incredible support, the SMS Research Foundation Grant is now accepting proposals! By joining us in the Steps Move Science event, you play a vital role in funding innovative research in Smith-Magenis Syndrome.
Our grant program seeks out groundbreaking projects that push the boundaries of SMS research. With your help, we can provide the necessary resources to propel advancements in understanding and treating SMS.
Learn more about the SMS Research Foundation Grant and how your support is fueling innovation by visiting our website. Together, let's make a difference and create a brighter future for those affected by Smith-Magenis Syndrome. SMS Research Foundation Grant
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Celebrating 13 Years of Progress and Gratitude! |
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As we mark our 13th anniversary, we want to express our heartfelt appreciation to all the incredible individuals who have supported us on this journey. With your unwavering dedication and support, we have made significant strides in advancing research for Smith-Magenis Syndrome. From funding cutting-edge projects to fostering a sense of hope, your involvement in the Steps Move Science Walk and beyond has been instrumental in our progress. Together, we are creating a brighter future for everyone affected by Smith-Magenis Syndrome. Thank you for being part of our journey, and here's to many more years of dedication, progress, and impact!
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Improving Lives Through Research
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The SMS Research Foundation is dedicated to improving the lives of people with SMS. Since our founding in 2010, we have been singularly focused on investing in scientific research that will lead to life-changing therapeutics for this rare and complex genetic syndrome. |
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